Recognition, Description, and Variability of Spasticity in Individuals With Multiple Sclerosis and Potential Barriers to Clinician-Patient Dialogue: Results From SEEN-MSS, A Large-Scale, Self-Reported Survey

Abstract Background: The experience with spasticity varies among individuals multiple sclerosis and (MSS), as they may not recognize it or have the language to describe their symptoms. This can lead potential delays in diagnosis treatment. Methods: Symptoms Emotions Exploration Needed Multiple Sclerosis Spasticity was an online survey completed by 1177 MSS 2021. It sought capture symptoms of spasticity, variability symptoms, specific triggers, how conversations physicians were initiated. Results: mean age cohort 56.8 years 78% women. Prior onset, 65% respondents felt minimally prepared unprepared for possibly developing unaware that manifests part MS. Eighty percent experienced daily, which variable severity duration. triggered a range factors 90% those surveyed unable predict when would occur its severity. Day-to-day prevented from doing things wished do. Sixty confused recognizing them spasticity. Although 91% reported experiencing muscle spasms, only 69% used “muscle spasms” Other descriptors included tightness,” “stiffness,” “cramping,” “pain.” After proactively initiated discussions physicians, 52% had done so sooner, 42% delayed conversation up more than year. Conclusions: Results emphasize nature lack common underscoring importance education, earlier recognition, customized treatments tailored duration